Whats does EDS stand for?
Ehlers-Danlos syndrome (EDS) is a disease that weakens the connective tissues of your body. These are things like tendons and ligaments that hold parts of your body together. EDS can make your joints loose and your skin thin and easily bruised. It also can weaken blood vessels and organs.
What are the six types of EDS?
There are six main forms of EDS: hypermobility, classical, vascular, kyphoscoliosis, arthrochalasia, and dermatosparaxis, and each is distinctive of one another by a “unique defect in connective tissue.”
What is an EDS patient?
Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provide strength and elasticity to the underlying structures in your body.
Is EDS high risk for Covid?
For a person with EDS or HSD the risk of getting complications from covid-19 will depend on the nature of that persons’ specific health concerns. Some people may have one or more of the risks listed. But many people with EDS or HSD will not have these risk factors.
Does EDS qualify for disability?
If you have EDS and are unable to work because of severe symptoms from it, you may be eligible for disability benefits, including Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).
How long can you live with EDS?
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
Should someone with EDS get the Covid vaccine?
In general, having HSD or EDS is not considered at this time a high risk. However, if for any reason (which may or may not be related to your HSD or EDS) you have one of the high or moderate risks listed, then your case would likely be considered a priority for COVID-19 vaccination and you should talk with your doctor.
Is the 2021 eds Leadership Summit still on?
The 2021 EDS Leadership Summit has been cancelled. We will return stronger than ever, May 10 – 13, 2022 In planning this year’s EDS, our number one concern has always been the health and safety of our attendees and their families.
How many EDs meetings are there in the world?
EDS: Providing support for over 50 meetings, conferences, workshops and symposia throughout the world. EDS: Maintaining a comprehensive set of awards representative of our member activities. Don’t forget to renew your EDS membership.
Who is Tiffany Edwards from the Ehlers Danlos Society?
Join Senior Occupational Therapist Tiffany Edwards from Perth, Australia for a live 60-minute webinar designed for teenagers aged between 14–20 years with EDS, HSD, and hypermobility.