Can you get benefits for hypermobility?
If you have EDS and are unable to work because of severe symptoms from it, you may be eligible for disability benefits, including Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).
What is the life expectancy of someone with hypermobility?
Patients with the classical and hypermobility forms of Ehlers-Danlos syndrome have a normal life expectancy. About 80% of patients with vascular Ehlers-Danlos syndrome will experience a major health event by age 40 and the life expectancy is shortened, with an average age of death of 48 years.
Does hypermobile EDS get worse with age?
The most common types of EDS (classical, classical-like, and hypermobile) do not greatly affect life expectancy. However, symptoms may become more severe as patients age and joints that have been dislocated multiple times become painful. Everyone’s bones become weaker with age.
What is the life expectancy of someone with EDS?
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
Can you get a blue badge if you have hypermobility?
If you’re disabled or have a health condition that affects your mobility, you can apply for a Blue Badge. You can also apply for a badge if you care for a child with a health condition that affects their mobility.
Is being hypermobile a disability?
Aim: Among the Ehlers-Danlos syndromes, the hypermobile subtype (hEDS) is the most common. The variety, accumulation and duration of the painful symptoms make hEDS a chronic and highly disabling condition.
Does EDS make you look younger?
Less wrinkles Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.
Can hypermobility affect your heart?
Although the most common forms of EDS — classical and hypermobile — do not typically cause heart problems, these problems can happen. In addition to weak, easily dislocated joints, and soft, fragile skin, these patients may also have weak blood vessels that are easily stretched or torn.
Will I end up in a wheelchair with EDS?
Some patients with EDS may require specialized mobility devices, such as a wheelchair or a scooter, and a walker, crutches or a cane for mobility. However, care should be taken so that joints and other areas of the body affected by the disease are not injured by shifting weight when, say, walking with a cane or crutch.
Does EDS show on MRI?
MRI can help detect lesions in the brain containing collagen fibers, which are often seen in EDS patients who previously experienced trauma.
Is EDS a sleep disorder?
EDS patients are known to suffer from significant sleep problems and excessive daytime sleepiness. EDS-features such as increased pharyngeal collapsibility have been proposed to cause obstructive sleep apnea (OSA), however this has not been investigated.
Does hypermobility make you tired?
Fatigue may be a major symptom in hypermobile type Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD). Doctors can misdiagnose people with ME/CFS that actually have hEDS or HSD, leading to treatment not being as good as it could be.
Are there any side effects to hypermobility syndrome?
There is also growing awareness that some people with ‘milder’ variants of the hypermobility syndromes have added complications beyond hypermobility and pain, that include autonomic disturbances. In HDCTs the body’s connective tissue proteins that give the body its intrinsic toughness are affected.
How many people in the UK have hypermobile joints?
Some estimates suggest that around one in every five people in the UK may have hypermobile joints. In many cases, the joints become stiffer with age, although joint hypermobility and its associated symptoms can continue into adult life. It’s not known how many people have JHS in the UK, as the condition is often not recognised or is misdiagnosed.
Can a person with hypermobility be considered an advantage?
In many people joint hypermobility is of no medical consequence and commonly does not give rise to symptoms. Hypermobility can even be considered an advantage, for example athletes, gymnasts, dancers and musicians might specifically be selected because of their extra range of movement.
What kind of discounts can I get from the NHS?
We work with fashion and beauty retailers, homeware brands and restaurants. What is the NHS discount? The NHS discount you can get varies for different retailers, it’s normally around 20% but some generous brands give as much as 50% off. How can I spot NHS discounts?