Can Ehlers Danlos cause blindness?
This causes pressure on many structures of the eye, including the optic nerve. The damaged optic nerve can result in blindness if not treated.
Can EDS affect the eyes?
Ophthalmological abnormalities in EDS include but are not limited to myopia, retinal detachment and glaucoma. Some of these can be vision-threatening. An optometrist or ophthalmologist should establish a comprehensive baseline for a person with EDS, including a complete eye exam and history.
What is the most severe presentation of Ehlers Danlos Syndrome?
SPONDYLODYSPLASTIC EDS results in short stature, joint hypermobility, and intellectual disability. VASCULAR EDS is the most serious type due to the possibility of a shortened lifespan. Minor trauma can lead to extensive bruising and skin tears. Arterial rupture is the most common cause of sudden death.
Does hypermobility affect your eyes?
The condition can cause hypermobile joints in addition to a number of typical characteristics, such as being tall and having abnormally long and slender limbs, fingers and toes. It can also cause potentially serious problems affecting the heart and eyes.
Is Ehlers-Danlos syndrome fatal?
Vascular Ehlers-Danlos syndrome can weaken your heart’s largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture.
Why does EDS make you look younger?
Less wrinkles Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.
What is the life expectancy of someone with Ehlers-Danlos Syndrome?
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
What is the life expectancy of someone with Ehlers-Danlos syndrome?
Is Ehlers Danlos considered a disability?
Can I Get Disability For Ehlers-Danlos Syndrome (EDS)? The answer is that Ehlers-Danlos Syndrome (EDS) can be a disabling condition, depending on how it presents. EDS is a genetic disorder affecting connective tissues and causing an array of serious physical problems, ranging from joint pain to cardiovascular issues.
Does EDS make you look old?
Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor’s even describe the skin as “velvet-soft”.
Can you claim disability for hypermobility?
If you have EDS and are unable to work because of severe symptoms from it, you may be eligible for disability benefits, including Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI).
What is the life expectancy of someone with hypermobile Ehlers-Danlos syndrome?
Patients with the classical and hypermobility forms of Ehlers-Danlos syndrome have a normal life expectancy. About 80% of patients with vascular Ehlers-Danlos syndrome will experience a major health event by age 40 and the life expectancy is shortened, with an average age of death of 48 years.
Is Ehlers Danlos an autoimmune disease?
A much rarer group of connective tissue disorders is called Ehlers-Danlos syndrome. Unlike the diseases noted above, Ehlers-Danlos syndrome is not an autoimmune condition, it’s an inherited disorder.
What does Ehlers Danlos Syndrome look like?
People who have Ehlers-Danlos syndrome, vascular type, often share distinctive facial features of a thin nose, thin upper lip, small earlobes and prominent eyes. They also have thin, translucent skin that bruises very easily.
How does Ehlers-Danlos syndrome affect teeth?
Various types of Ehlers-Danlos syndromes can affect the teeth, gums and other oral structures. Hypermobility of the temporomandibular (jaw) joint can result in dislocations, facial and head pain.
Does Ehlers Danlos syndrome affect your mouth?
The Ehlers-Danlos Syndromes can have a significant impact upon oral health and mouth function; however the majority of patients will probably only be liable to the common disorders of the teeth and gums.